PARTNERSHIP GUIDE for Stigma and Dementia

About this project:

Native Women’s Association of Canada (NWAC). NWAC was founded on the collective goal to improve, promote, and advance the social, economic, cultural and political well-being of First Nations, Métis and Inuit women.  NWAC became a non-profit organization in 1974, and includes twelve Indigenous women’s organizations from across Canada.

NWAC’s project called “Stigma: An Exploration of Lived Experiences, Understandings and Behaviours of Dementia within Indigenous Communities.” is funded by the Public Health Agency of Canada (PHAC). This project aims to understand needs, knowledge, attitudes and behaviours about dementia while raising awareness of dementia within First Nation, Métis and Inuit communities.  The research objectives are listed next (in four bullets):

  • Identify knowledge, attitudes, experiences and behaviours around stigma
  • Reducing stigma related to dementia;
  • Improve awareness of dementia, signs and symptoms;
  • Increase awareness of community resources, cultural practices and traditions

The next section on protocols will outline my commitments as a research to you, and it also highlights benefits to you, such as gifting you for your time and commitment to this research and our sharing of the session notes immediately after the session.

The following protocols will guide our dialogue and my actions

  1. You are in control of what you care to say, and you can ask for anything you have said to be removed.
  2. You can choose to have your name listed as knowledge contributor in the report, or we can ensure your identity is completely protected.
  3. You have a right to ask questions at any time, beforehand, during and after our dialogue.
  4. You will receive $100 e-transfer as a gift for thinking about and assisting NWAC and this project in moving forward with actions.
  5. You also will receive the report from the focus group within 24 hours of the workshop via email.
  6. A final project report will be emailed to you within 6-months.
  7. You may add any protocols or actions for this project by emailing Megan VanEvery, Dementia Project Coordinator, NWAC at — MVanEvery@nwac.ca.  Megan VanEvery can also be contacted if the session leaves you with questions or concerns about you or your friends and loved ones dealing with Dementia (other Resources are listed on the next page and will be shared in our session).

    Dec. 7th, 1PM EST - 3PM EST - First NationsDec. 9th , 1PM EST - 3PM EST - InuitDec. 14th, 1PM EST - 3PM EST - Metis

    Resources

    for any concerns or questions that may come from our session.

    Hope for Wellness Help Line at 1-855-242-3310

    NWAC Elder Support available Monday-Friday from 9-11am EST and 1-3pm EST Toll Free: 888-664-7808

    Talk 4 Healing 1-855-554-4325

    Alzheimer Society of Canada Toll-free: 1-800-616-8816

    Baycrest Dementia Helpline for Families at 416-785-2500 ext. 2223